That is why I have trust: unpacking what 'trust' means to participants in international genetic research in Pakistan and Denmark
Dublin Core
Title
That is why I have trust: unpacking what 'trust' means to participants in international genetic research in Pakistan and Denmark
Author
Sheikh, Zainab
Hoeyer, Klaus
Hoeyer, Klaus
Language
English
Publication Date
20170905
Abstract
Trust features prominently in a number of policy documents that have been issued in recent years to facilitate data sharing and international collaboration in medical research. However, it often remains unclear what is meant by ‘trust’. By exploring a concrete international collaboration between Denmark and Pakistan, we develop a way of unpacking trust that shifts focus from what trust ‘is’ to what people invest in relationships and what references to trust do for them in these relationships. Based on interviews in both Pakistan and Denmark with people who provide blood samples and health data for the same laboratory, we find that when participants discuss trust they are trying to shape their relationship to researchers while simultaneously communicating important hopes, fears and expectations. The types of trust people talk about are never unconditional, but involve awareness of uncertainties and risks. There are different things at stake for people in different contexts, and therefore it is not the same to trust researchers in Pakistan as it is in Denmark, even when participants donate to the same laboratory. We conclude that casual references to ‘trust’ in policy documents risk glossing over important local differences and contribute to a de-politicization of basic inequalities in access to healthcare.
Primary Classification
18.1
Secondary Classification
18.1; 15.1; 21.1
Primary keywords
cross-cultural comparison [pri]; data sharing [pri]; genetic research [pri]; research ethics [pri]; trust [pri]
Secondary keywords
health care delivery; international aspects; interviews; researchers; research subjects
Subject
Denmark [pri]; Pakistan [pri]
Journal Article
Medicine, Health Care and Philosophy 2017 September 5: 11 p.[Online first]. Accessed:October 23, 2017
Link for Internet access
Note
Copyright © 2017, The Author(s). Creative Commons Attribution 4.0 International License
Bibliography
49 refs
ISSN
13867423 (print); 15728633 (online)
Collection
Citation
“That is why I have trust: unpacking what 'trust' means to participants in international genetic research in Pakistan and Denmark,” Islamic Medical & Scientific Ethics, accessed January 19, 2025, https://imse.ibp.georgetown.domains/items/show/37810.